SUBCOMMITTEE REPORT

BRIAN'S LAW (MENTAL HEALTH LEGISLATIVE REFORM), 2000 / LOI BRIAN DE 2000 SUR LA RÉFORME LÉGISLATIVE CONCERNANT LA SANTÉ MENTALE

SCHIZOPHRENIA SOCIETY OF ONTARIO

ONTARIO MEDICAL ASSOCIATION

COMMUNITY ADVISORY COMMITTEE OF THE ST JOSEPH'S MENTAL HEALTH PROGRAMS

ONTARIO HOMES FOR SPECIAL CARE ASSOCIATION

CONTENTS

Wednesday 10 May 2000

Subcommittee report

Brian's Law (Mental Health Legislative Reform), 2000, Bill 68, Mrs Witmer / Loi Brian de 2000 sur la réforme législative concernant la santé mentale, projet de loi 68, Mme Witmer

Schizophrenia Society of Ontario
Mr Ted Fielding
Ms Janice Wiggins

Ontario Medical Association
Dr Albert Schumacher
Dr Stephen Connell
Dr Brian Hoffman
Ms Barb LeBlanc

Community advisory committee of the St Joseph's mental health programs
Mr Terry Burrell
Ms Margaret Van Dijk

Ontario Homes for Special Care Association
Mr Brad Rye
Mr Mike Dowdall

STANDING COMMITTEE ON GENERAL GOVERNMENT

Chair / Président
Mr Steve Gilchrist (Scarborough East / -Est PC)

Vice-Chair / Vice-Présidente

Mrs Julia Munro (York North / -Nord PC)

Mr Toby Barrett (Norfolk PC)
Mrs Marie Bountrogianni (Hamilton Mountain L)
Mr Ted Chudleigh (Halton PC)
Mr Garfield Dunlop (Simcoe North / -Nord PC)
Mr Steve Gilchrist (Scarborough East / -Est PC)
Mr Dave Levac (Brant L)
Mr Rosario Marchese (Trinity-Spadina ND)
Mrs Julia Munro (York North / -Nord PC)

Substitutions / Membres remplaçants

Mr Brad Clark (Stoney Creek PC)
Ms Frances Lankin (Beaches-East York ND)
Mr Richard Patten (Ottawa Centre / -Centre L)
Mr Joseph Spina (Brampton Centre / -Centre PC)

Also taking part / Autres participants et participantes

Mrs Lyn McLeod (Thunder Bay-Atikokan L)

Clerk / Greffier

Mr Viktor Kaczkowski

Staff /Personnel

Ms Lorraine Luski, research officer, Research and Information Services

The committee met at 1616 in committee room 1.

SUBCOMMITTEE REPORT

The Vice-Chair (Mrs Julia Munro): I'd like to welcome all of you to the standing committee on general government. We are going to begin this afternoon's proceedings. I must apologize for the lateness of our start, but we are of course under the rule of the House in terms of when we are able to start. We're going to begin this afternoon with the report of the subcommittee. I'd ask Mr Clark to do that for us.

Mr Brad Clark (Stoney Creek): Your subcommittee met on Thursday, May 4, 2000, and Monday, May 8, 2000, to consider the method of proceeding on Bill 68, An Act, in memory of Brian Smith, to amend the Mental Health Act and the Health Care Consent Act, 1996, and agreed to recommend the following:

(1) That the committee meet in Toronto at its regularly scheduled meeting times on the following dates: Wednesday, May 10, Monday, May 15, Wednesday, May 17, Monday, May 29, and Wednesday, May 31; that the committee meet in Toronto on the evening of May 15, and that the committee meet in Hamilton on Friday, May 12, Thunder Bay on Tuesday, May 23, and Ottawa on Wednesday, May 24, 2000.

(2) That the Chair of the committee write to the House leaders to request authorization for the committee to meet beyond its regularly scheduled meeting times in accordance with the schedule set out in paragraph (1).

(3) That the committee invite the Minister of Health to make a statement to the committee on the final day of committee hearings. The time allocated for caucus statements and questions will be determined at a later date.

(4) That the clerk of the committee be provided with the names and contact information of any expert witnesses that each of the three caucuses would like to invite to make presentations to the committee.

(5) That an advertisement be placed in the largest circulation daily paper in each of the following cities: Toronto, Hamilton, Ottawa and Thunder Bay, as well as in the Ottawa French-language daily, and local papers in the communities of Fort Frances, Kenora, Dryden and Marathon. Notice of hearings is also to be placed on the Ontario Parliamentary Channel and the committee's Internet Web page.

(6) That the deadline for the receipt of requests for those wishing to make an oral presentation be no later than 48 hours (two business days) prior to the commencement of the hearing on a given day.

(7) That time for those requesting to make oral presentations be allocated on the following basis: 30 minutes for expert witnesses, 20 minutes for groups and organizations and 10 minutes for individuals.

(8) That the Chair and clerk of the committee be authorized to schedule witnesses and to make whatever logistical arrangements that are necessary to facilitate the committee's proceedings.

(9) That the deadline for the receipt of written submissions be 5 pm on Monday, May 29, 2000.

(10) The witness expenses be paid subject to approval by the subcommittee.

(11) That the legislative research officer provide a summary of the oral presentations to the committee upon the completion of public hearings and to undertake any other research that may be requested.

(12) That the clerk of the committee be authorized, prior to the passage of the report of the subcommittee, to commence making any preliminary arrangements necessary to facilitate the committee's proceedings.

The Vice-Chair: Any discussion, any debate? Moved for the acceptance of the report of the subcommittee?

Mr Garfield Dunlop (Simcoe North): So moved.

The Vice-Chair: All those in favour? Agreed.

BRIAN'S LAW (MENTAL HEALTH LEGISLATIVE REFORM), 2000 / LOI BRIAN DE 2000 SUR LA RÉFORME LÉGISLATIVE CONCERNANT LA SANTÉ MENTALE

Consideration of Bill 68, An Act, in memory of Brian Smith, to amend the Mental Health Act and the Health Care Consent Act, 1996 / Projet de loi 68, Loi à la mémoire de Brian Smith modifiant la Loi sur la santé mentale et la Loi de 1996 sur le consentement aux soins de santé.

SCHIZOPHRENIA SOCIETY OF ONTARIO

The Vice-Chair: We are now able then to proceed with the presentations. I'd like to ask for the Schizophrenia Society of Ontario, the provincial office, if those making a submission on their behalf would come forward to the front.

Welcome. If I could ask you, for the purposes of Hansard, to introduce yourselves and then you may begin your presentation.

Mr Ted Fielding: My name is Ted Fielding. I'm president of the Schizophrenia Society of Ontario.

Ms Janice Wiggins: My name is Janice Wiggins. I'm the executive director of the Schizophrenia Society of Ontario.

Mr Fielding: Thank you for allowing us the opportunity to appear here this afternoon. I'm pleased to say that quite a few members of our society are here supporting us and it's nice to see such a good turnout on such short notice.

I'd like to start by just giving you a thumbnail sketch of the Schizophrenia Society of Ontario. It was founded in 1979 and its mandate includes educating the public on schizophrenia, supporting people with schizophrenia and their families, and advocating for better treatment, care and services for people with schizophrenia. The society has 34 chapters that cover the entire province, from Toronto to Thunder Bay and Windsor to Cornwall.

The Schizophrenia Society of Ontario has been working for over 20 years to alleviate the suffering caused by this complex brain disease, and we are convinced that Brian's Law represents a large step towards the creation of a more flexible mental health system that can better answer individual needs.

Just a brief comment on what schizophrenia is. Schizophrenia is a brain disease that, at worst, deprives its victims of contact with reality. The positive symptoms of the disease include hallucinations, delusions and paranoia. The negative symptoms include difficulty in organizing thought or speech and in initiating goal-directed behaviour. The positive symptoms of the disease can usually be controlled through medication, which is a fundamental component in treating schizophrenia. Unfortunately, the disease deprives some people of the ability to recognize that they are ill and so leads to treatment refusals and much suffering and harm. We covered some of this in a paper that we presented to the government in May 1999 with the title Enough is Enough.

We congratulate the government on the thorough job it has done in consulting with interested parties and for its careful effort to provide balanced and fair amendments to the Mental Health Act. Brian's Law will make treatment available more quickly and reliably to severely ill people and will allow the community and hospital systems to better coordinate their efforts.

The bill's critics have alleged that it is an attempt to use coercion as a substitute for adequate community resources. We categorically reject this claim. The better use we make of our community resources, the fewer people we allow to deteriorate to the point of severe illness before intervening to assist them, the more resources will be available to provide better social supports for people with mental illness.

We have two specific recommendations regarding the proposed amendment. The first one: We recommend speedy crisis intervention. We recommend that the government further amend subsection 15(1) and related provisions of the Mental Health Act, so that clause l5(1)(c) of the act, "lack of competence to care for self," will include a new and distinct criteria, which reads "or has shown or is showing an apparent lack of capacity to make a decision with respect to admission to a psychiatric facility for treatment," and so that clause l5(1)(f) of the act, "serious physical impairment of the person" will include a new and distinct criteria "or serious disruption of ordinary mental functioning."

Families, and people with severe mental illness, have experienced first-hand the suffering that occurs when a person is allowed to deteriorate to such an extent that they are no longer able to make decisions for themselves. Mental deterioration must be recognized as a symptom of severe and persistent mental illness and included as a criterion for involuntary assessment.

This is a quote from a family member from northern Ontario in a letter to Minister Witmer, dated April 10 of this year:

"More representative of a person suffering from a severe mental illness is the person who is no threat to anyone, but suffers constantly. Typically, they are malnourished, lonely, living in constant anxiety or fear and unable to maintain a residency. They are sometimes taken advantage of or mistreated by others. They would benefit from treatment but will not agree to treatment. They have been hospitalized numerous times but relapse upon release....

"While never a threat to anyone else and only a threat to himself by neglect"-and this is a man in particular-"(this man) lived in constant suffering."

The second change or amendment we'd like to see is greater protection from liability for the substitute decision-maker who consents to a plan and for family members who participate in the plan.

The issue of liability is of great concern for the members of the Schizophrenia Society of Ontario. The proposed legislation will expose the substitute deciders who consent to a treatment plan as part of an outpatient committal order, and the family members who participate in the treatment plan, to the risk of civil lawsuits. It is unfair to saddle family members, who already carry unusually heavy burdens, with the fear that a treatment plan gone awry could expose them to financial ruin. The legislation should make it easier, not harder, for relatives and friends of people with mental disorders to participate in their care.

I have another quote, this one from a mother of a son with schizophrenia living in the Golden Horseshoe. This letter was addressed to Minister Witmer on March 28 of this year:

"My son has never been hospitalized. I have taken care of him at home by myself. My son has never displayed violent behaviour toward others. He has always been self-destructive. I cannot describe the trauma of finding your loved one ablaze in fire, or any one of the other terrifying events that finally result in the diagnosis of schizophrenia. I cannot describe the grief experienced by families who have a child, sister, brother etc diagnosed with schizophrenia.... Once we, their families, are gone, these invisible mentally ill will then become the very visible mentally ill as we are their lifelines."

I'd like to turn the presentation over to Janice.

Ms Wiggins: Does Brian's Law stigmatize or stereotype people with mental disorders? The existing law limits hospitalization to those who are dangerous to themselves or others. The new law permits intervention when a person is experiencing substantial mental or physical deterioration, that is, the old law fosters the stereotype that mental illness is linked to dangerousness. The new law counters the old stereotype by recognizing that people with serious mental illness are exposed to suffering and deterioration from which they can and should be spared. Untreated serious mental illness can sometimes lead to violence towards others, but more often it leads to horrible suffering in the person afflicted by the disorder. We need to ensure that people who are in need of medical treatment get it. SSO emphasizes that the community must look after the many, many more people with mental illness who are not dangerous, but who are ill and suffering.

The existing law requires that people be taken out of the community, that is, hospitalized, for treatment. The new law allows people to be treated in the community in the least intrusive environment. This will mean people with mental illness need no longer be excluded from the community merely because they require treatment, but will instead remain and function in the community, where they belong.

Often catastrophic events make headlines. Last December, a 47-year-old man with schizophrenia was set on fire near his Toronto apartment building. While police said the motive for the attack was robbery, neighbours said the man's condition had been deteriorating before the incident.

In a letter published in the Globe and Mail, our president, Ted Fielding, wrote, "This hate crime might not have happened if we had a Mental Health Act that recognized more than just bodily harm as a criteria for involuntary committal." SSO members, many of whom are with us today, ask how many more people have to commit suicide, how many more people have to be put in jail, how many more people have to suffer on the streets of Ontario or die, before laws designed to protect all people come into place? There have been many coroners' inquests that have dealt with these questions and solutions that must be implemented to prevent such tragedies from happening again.

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The fact is that some people with severe mental illness, when not taking medication, are more dangerous than other people. Most often they are a danger to themselves, not others; 10% commit suicide. Every time an untreated mentally ill person commits a crime like killing a sportscaster, pushing someone in front of a subway train or attacking their next-door neighbour, that reinforces the public perception and the myths that spread to the majority who are not dangerous.

I'd also like to address the question of resources. Additional social resources, for example housing, income supports and so on, will not benefit people who are too sick to take advantage of them. A significant fact of schizophrenia is that people lack insight into their illness. Hence, people believe that they are not sick while at the same time suffering from awful consequences of this debilitating illness, including homelessness and suicide.

This law requires psychiatrists, hospitals and the community care sector to coordinate their efforts, which the current Mental Health Act does not do. Accountability for the provision of service to the severely mentally ill must be built into the system. It is unconscionable that any responsible community agency could or would refuse to provide access to treatment and supports for those who are severely mentally ill. Service providers must face an obligation to serve those people who may require more intensive care for longer-term response. It is not enough to only look after the worried well.

This law will allow us to open existing social resources-for example, supported housing-to people who are otherwise too sick to be safely admitted to them. Some of the mentally ill who are now homeless have been evicted from supported housing because of their psychotic behaviour. Provisions in the law will now ensure that people can live in the community.

This law will allow psychiatrists and hospitals to provide assistance to families, who are now the main resource in the community for serious mental illness. All too often, caregivers are family members who are aging and stricken by the effects of caring for someone who is mentally ill.

As we said earlier, we have brothers, mothers, wives, sisters and friends of persons who are ill in the audience today and they can tell you first-hand what it's like.

Caregivers are often left with nowhere else to turn in a crisis. Many of our volunteers across the province have experienced untold trauma in their homes. Many of them have informed us that they have sought help repeatedly but were unable to get it under the inadequacies of the current legislation. We often hear anguished parents asking who will care for their loved one when they are no longer able to do so. Siblings share concern for their brother or sister and look to the mental health system to provide some reassurance.

I'm quoting from a letter, from the mother of a man with schizophrenia who lives in the greater Toronto area, dated April 10, 2000. She says: "No home was meant to be a mental institution, but many are. If you have a son or daughter, sister or brother, mother or father with a severe mental illness your life is forever changed. You constantly worry when they are not with you and are in constant turmoil when they are at home. The pain of watching someone you love living in a world of voices-you cannot explain it."

Brian's Law, a natural step in the development of Ontario's mental health law: Ontario's Mental Health Act, the Consent to Treatment Act, 1992, and the current Health Care Consent Act, 1996, have allowed people to be found incapable of consenting to their own treatment. Such people may, after having an opportunity to exercise their legal rights to resist the finding of mental incapacity, be treated on another person's consent, and it's usually the relative's consent.

Brian's Law is not about forcing treatment but rather about keeping people out of hospital. The issue raised by Brian's Law, especially the new provisions of community treatment orders, is not about whether you treat but about where you treat.

I have another quote from a letter, dated March 29 this year, from the mother of a son with schizophrenia in Markham. She says: "The proposed legislation provides a ray of hope to families who are struggling to cope with a loved one stricken by this insidious disease, and I hope that our elected representatives will have the courage, compassion and determination to carry it through."

Another individual in Scarborough, who is a wife and mother of persons with schizophrenia, wrote: "The heart-wrenching experiences families have had to go through because the act has been structured to allow people with schizophrenia to escape treatment when it is so obviously needed are no longer tenable in this day and age. I have experienced these hardships through my husband and my son who have been affected by this disorder. In both cases, they refused to take their medication and found themselves in a crisis situation involving the law and spending time in jail. This was totally inappropriate. Schizophrenia is a medical condition and must be recognized as such. Often it is necessary to remove such a person from society, but when this is the case, provisions must be found in the medical setting-a hospital, not a jail. These were very trying times for all the family who love them and were so powerless to effect treatment."

A very simply put statement from a woman whose brother suffers from schizophrenia is, "Please help to open up the way to earlier interventions by changing the current legislation."

In summary, SSO believes that the recent development of more effective medications with lower side effects, and new government initiatives such as the assertive community treatment teams, are improving life for many people disabled with schizophrenia. The passage of Brian's Law will make these opportunities available to more sick people and increase the hope we see for the thousands of lives that have been affected by severe and persistent mental illness.

I want to thank the committee for their attention to our deputation today. Certainly, we're available for questions.

The Vice-Chair: Thank you very much. We have about four minutes per caucus for questions. We'll begin with the official opposition.

Mrs Lyn McLeod (Thunder Bay-Atikokan): Thank you. I very much appreciated your presentation. I know how important it is to you to be here today and to make this presentation to the committee.

I just want to ask you a question specifically about the first amendment you proposed, because that's an area where there are already significant amendments proposed to the current act. Can you explain to me what you think is missing from the proposed amendment in Brian's Law and how your amendment would make a significant difference?

Mr Fielding: The proposed amendment, which I presume is section 15(1), talks primarily of bodily harm as one of the criteria for involuntary commitment, and is also one of the three items in that section that talks of lack of competence to care for self. We find that is a bit too narrow. There are a lot of people who are extremely ill and are not a danger to themselves or anyone else and obviously need treatment. What we would like to do is expand that lack of competence to care for self to include "or has shown or is showing an apparent lack of capacity to make a decision with respect to admission to a psychiatric facility for treatment."

We get many calls from parents who are desperate to get their loved ones into treatment but can't because they don't meet the "dangerous" criteria or just the "lack of competence" one.

Mrs McLeod: That's where my question comes in. Obviously, removing "from imminent harm," which is in my colleague's original bill, is an important part of that. But it does go on to say, in addition to the bodily harm, "or substantial mental or physical deterioration of the person." I just thought that was fairly similar to what you were proposing as an amendment. That's why I was trying to get a sense, because it does suggest in the government's bill that it would be mental deterioration, not just physical harm.

Mr Fielding: Yes, but that's after the first episode, the way the amendment to the bill is currently written. What we're talking about is a situation where you have a first episode in the illness, which is this subsection (1). The new subsection that the government has added is (1.1), which is, if previously treated, this is what you look for.

Mrs McLeod: A last thing: You make a point in your very well organized brief of saying that this is not about coercion and it's not about force. The images that are put forward are often of somebody being physically forced to take their medication. What response would you give to that?

Mr Fielding: We have a Health Care Consent Act that says that treatment can only be offered to someone who will accept the treatment. If that person does not have the capacity to understand what is involved with the treatment, then the law provides for a substitute decision-maker who can make that decision. If the decision is to treat that person, that person still has the right to appeal to the Consent and Capacity Review Board if they don't like that particular decision. We support that; we always have. People have a right to oppose that if they wish.

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The Vice-Chair: One quick question, Mr Patten.

Mr Richard Patten (Ottawa Centre): Actually I just want to make a comment. I know that for many years you've worked diligently, patiently and with great vigour representing a lot of families in this province who truly have gone through very difficult times and people who have not been able to receive treatment. I just want to personally congratulate you on that and I am pleased to see you here today. Thank you.

Ms Frances Lankin (Beaches-East York): Let me add my words of welcome to you and also to Ruth Molloy and a number of people from the East York Schizophrenia Society who are all here in the row. I welcome them. I had the opportunity to meet with them and it was very helpful to me as a member of the Legislature in dealing with this bill.

I have a quick comment and then a couple of questions. I wanted to indicate that I really support the point you made about family liability and protection from liability. I have a bit of concern about the breadth of protection from liability that already exists in the act, that there is no one who has any responsibility, and yet under current law there are professional responsibility and accountability mechanisms. So I want to understand from experts how those provisions interact with that. But I completely agree that it is wrong that the family be left with the liability. We need to have the families involved without that threat.

One of the points that I think a lot of people have made is that for this bill to be successful the access to the treatment facilities and resources in the community have got to be there. There was a previous law in this province, the Long-Term Care Act, which is no longer in effect because we've gone a different route in terms of how we organize those services, but contained in that was a list of minimum mandatory services that had to be made available in all regions of the province. I've been talking to people, proposing to bring forward an amendment of that sort to this bill, because for the community treatment order, which has a provision that says it will only happen if those services are available in the community, to be successful and to have a positive intervention in people's lives, we need to ensure the services. I'm wondering if you could comment on whether that's something you might, in general terms, be supportive of as an organization.

Mr Fielding: Definitely. Obviously we need the services to make this law work. I'm not a lawyer so I don't know whether this can be done through regulations after this law is proclaimed. We recognize that this thing won't work unless you have those supports and we would certainly advocate for that if it doesn't happen, you can rest assured.

Ms Lankin: Stay tuned for my amendment then.

The other thing that I would like to propose to you, in some jurisdictions governments have created an office called a mental health advocate's office. Here in Ontario we have a child advocate's office, we have an Environmental Commissioner, an Ombudsman and a number of things. The mandate of such an office would be to review what's happening in this field, the way in which there is coordination or lack of coordination between psychiatric facility-based, institutional-based services, community-based services and law services dealing with persons with mental disorders.

I again have talked to some people and am interested in proposing the creation of such an advocate's office, because one of the things we need to do is monitor the implementation of this legislation and ensure that it is reaching the collective goals that have been expressed by people who even have opposing views about the details. Is that something in general that you have ever looked at or that you might be supportive of?

Ms Wiggins: That is something we have considered but maybe not under that specific title of advocate's office. But I think you raise a very good point in recognizing that there are many components to mental health and many components to the law that need to be implemented. To have a quasi-independent body available to all of us, in the community in particular and speaking on behalf of the families, yes, if there is a number that you can call or there's an office that is going to be able to respond is up for discussion. I can't comment on specifics of it because we haven't seen the proposal, but certainly on the general side.

Ms Lankin: The last thing I want to put forward is the concept of requiring a reporting mechanism. a community treatment order can't be implemented because services are not available in the community or people are unwilling to provide the services-you referenced that-that there is triggered a reporting mechanism back to the ministry and the Legislature so we can keep track of that and it allows us to examine what we need to do as government to implement greater resources. That's another general idea I'm interested in if you think that might be useful.

Ms Wiggins: I would suggest that, yes, that would be a useful mechanism to ensure that the accountability is there in the system. I think what we're emphasizing is that the system must be held accountable.

Mr Toby Barrett (Haldimand-Norfolk-Brant): I want to thank Ms Wiggins and Mr Fielding for testifying. You can appreciate that this standing committee is going to hear some divergent perspectives on this issue with respect to very serious mental health issues. There are different opinions as far as the causes and certainly different opinions with respect to solutions.

Earlier we had a question making reference to your statement that Brian's Law is not about forcing treatment but rather about keeping people out of the hospital. As I understand it, a community treatment order defines conditions under which a person with a serious mental illness may live in the community and, failing to follow an order, is returned to a psychiatric facility. But the return, as I understand it, is for assessment, not hospitalization. That's my understanding of these community treatment orders.

I wished to ask you a question. In much of your presentation you present evidence of support for community treatment orders, specifically in this case for people with schizophrenia. I wondered if you could be more specific. Could you give us some specific examples of ways in which community treatment orders can benefit people with schizophrenia?

Mr Fielding: The whole concept of community treatment orders is to prevent this revolving-door situation that occurs with people who are the most severely ill. If you can keep people in the community on community treatment orders, it then frees up beds that now are being occupied by those people on a repeat basis. It's a much more efficient use of the services available for mental health.

Mr Clark: I want to thank you again for coming out and participating in the consultations.

During the first round of the consultations we heard from a number of different parties that they believed the Mental Health Act was fine as it was written and that it was simply a question of education; if we educated the public, if we educated health care providers, the Mental Health Act was sufficient as it is currently written. Would you care to comment on that position?

Mr Fielding: Actually, we've said in our paper that we just presented that the current Mental Health Act, which is centred very much around bodily harm, really perpetuates the stigma attached to mental illness that all people with mental illness are potentially dangerous. We know very well that they aren't. The majority are not dangerous. That is one thing we don't like about the current Mental Health Act.

The second is that it waits for you to descend to a level of illness where you might be dangerous or you might be dangerous to yourself, and we don't believe that people should be allowed to reach that level of suffering. We don't do that for people who are suffering from cancer, for example. We start treatment as soon as we discover that they have cancer. This act allows people to just keep sliding down until the inevitable happens.

We're faced with that all the time at the schizophrenia society, where I get a call from a mother saying, "My son is very ill," and I say, "Does he meet these criteria in the act?" She says, "No, but he's very ill," and I say, "I'm sorry, but there's nothing we can do; you're going to have to wait till he does something."

Mr Clark: That being said, if we're successful in amending the act, what would your position be about public education at that point?

Mr Fielding: I think it's very important, and it should continue. Only with education can you deal with the perception of the stigma attached to mental illness. It's time we recognized it for what it is: just an illness.

The Vice-Chair: Thank you very much for being here today and providing us with this presentation. We're ready to move on to our next presenters.

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ONTARIO MEDICAL ASSOCIATION

The Chair (Mr Steve Gilchrist): Good afternoon. I wonder if we could get you to introduce yourselves for the record, please.

Dr Albert Schumacher: I am Albert Schumacher, a family physician and president-elect of the Ontario Medical Association.

Dr Stephen Connell: I am Stephen Connell, a psychiatrist and chair of the Ontario Medical Association section on psychiatry.

Dr Brian Hoffman: I am Dr Brian Hoffman, chief of psychiatry at North York General Hospital.

Ms Barb LeBlanc: Barb LeBlanc, staff at the Ontario Medical Association.

The Chair: As you know, you have 30 minutes for your presentation. Please proceed.

Dr Schumacher: Thank you to the committee for allowing the Ontario Medical Association to present our views on Brian's Law before you today.

As a family physician in Windsor, which is underserved for psychiatry, family physicians like me are the primary providers of mental health services for many patients. We need the legislative changes that will help us provide better care for people with serious mental disorders. It is positive to see that there will be an enhanced ability for psychiatrists to work with family physicians and others in the community to tailor comprehensive treatment plans for each patient who is deemed to be suitable for either early release from hospital or hospital diversion entirely through community treatment orders.

In addition to our oral presentation, we have provided more detailed comments on each of the subject areas we intend to cover in our remarks. We hope this allows us to keep our presentation succinct and provide time for dialogue in areas that require further exploration. We also want to give you the proposals and the rationale behind them.

We plan to address four main issues with you this afternoon: first, the criteria for involuntary assessment and admission; second, community treatment orders; third, leaves of absence; and finally, accountability and liability.

I'll now turn the presentation over to my psychiatrist colleagues, who have been more closely involved than I with the legislative amendment process thus far. But before doing so, I would like to thank the government for adopting a number of the recommendations from our report in December 1999 and subsequent consultations.

Dr Connell: The Ontario Medical Association section on psychiatry has been working closely with the Ontario Psychiatric Association for about a year in order to press for amendments to the Mental Health Act that would help bring our legislative infrastructure in line with mental health reform, provincial psychiatric hospital divestment and patients' treatment needs. We are pleased to see that the legislation moves to decriminalize persons with mental illness by moving away from a strict "dangerousness" criterion for involuntary admission and care, at least in the case of patients with a lengthy psychiatric history. We believe the introduction of the new assessment and admission criterion, which acknowledges physical or mental deterioration, is an important step forward in ensuring that people get help before they reach a crisis point. This, in turn, will help to destigmatize mental illness.

We feel it would be clinically useful for the act to extend these non-bodily harms beyond the chronic population described in subsection 15(1). We recommend that clause 15(1)(f) of Brian's Law be amended to refer to serious physical or mental impairment of the person.

Dr Hoffman: As a psychiatrist in a hospital setting, I am constantly challenged to use the shrinking number of in-patient psychiatric beds more efficiently and to explore ways of facilitating outpatient treatment and ongoing community living. This is especially important with the downsizing of Queen Street and Whitby, where we now expect patients with chronic and cyclical illnesses to live in the community. I believe the introduction of community treatment orders will help us accomplish both of these goals, and I thank the government for including them in Brian's Law. As always, though, the devil is in the details, and I have some practical concerns about how I as a physician would implement CTOs.

Since we prepared our original brief in December 1999, we have spent a significant amount of time refining our model based on information obtained from other jurisdictions and extensive discussions around clinical need. No doubt, community treatment orders are useful for revolving-door and chronic patients. However, we now want to put forward the argument that CTOs could be effectively used for a more acute clinical population than we previously estimated. We continue to recognize that community treatment orders will be appropriate for a relatively limited number of people. Most people will continue their outpatient treatment voluntarily. But we believe their use should be actively encouraged as a least restrictive treatment option for patients who meet the involuntary hospital criteria, regardless of previous psychiatric history.

Dr Connell: Many people don't realize that our existing legislation already has a provision in it for a time-limited leave of absence from hospital, with a planned return. The OMA has examined this provision closely and believes it would be much more effective if it were modified to remove the existing requirement for a planned return, thus allowing a step-down system from in-patient treatment to supervised outpatient treatment prior to full discharge from the hospital. So we're talking about a transitional phase.

The OMA recommends that subsection 27(1) of the Mental Health Act be amended to remove the requirement that the patient be expected to return to the hospital. This is consistent with our encouraging moves to treatment based in the community.

Dr Hoffman: The final major area we would like to talk about today is accountability and liability. I want to go back to Stephen's point about community treatment orders. There is a pet peeve in that legislation why it will not be used in a general hospital under existing legislation, and that's because it requires the signature of the officer in charge of the psychiatric facility. That is not a doctor or a psychiatrist; it's the president and CEO of the hospital. You might get that person in a psychiatric hospital to sign, but in a general hospital-North York General is close to a $200-million operation. Throughout Brian's Law those duties assigned to the CEO are not delegable, and a lawyer will point that out. So I would ask for the repeated amendment that wherever you have "officer in charge of a psychiatric facility," you put "officer in charge of a psychiatric facility or delegate." The CEO would delegate that to me, and I could then implement things. The accountability would still go back to the officer in charge. It's a very simple thing, but it's one of the reasons why leaves of absence are rarely used in a general hospital.

As Dr Connell noted, the existing Mental Health Act has a leave-of-absence provision which allows a patient to live for a period of time in the community as long as he or she adheres to the conditions of the leave. Unfortunately, some of my colleagues in community hospitals are wary of using those leaves because of concerns about legal liability. It is interesting to note that many of my colleagues in the provincial psychiatric hospitals are less worried about this, and I suspect the reason lies in the fact that the act indemnifies hospitals and their employees from liability for any torts committed by their patients. Psychiatric hospital psychiatrists are employed directly by the provincial government, and therefore are also protected from liability in this regard.

Community hospital psychiatrists are not employees of the hospital in which they work, and therefore do not enjoy the same protection. In order to support community-based, team-oriented care, government should provide a medical-legal climate that encourages the use of leaves, community treatment orders and other least-restrictive alternatives to involuntary, in-patient hospitalization.

The OMA also believes that the accountability and liability provisions in the community treatment order section of Brian's Law are incomplete, as they only talk about physicians and other regulated health professionals but do not extend to community-based care providers. The OMA suggests that the provisions be expanded to include all persons who are involved in the treatment, care or supervision provided to a patient under a community treatment plan.

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Dr Schumacher: The OMA sees great potential for the amendments introduced by the government to the Mental Health Act to significantly improve our ability to provide more timely care and better follow-up care to persons with serious mental disorders. We support the major thrust of the government's amendments but have some specific suggestions for changes that will make the legislation more practicable in the field.

We hope you will read our detailed suggestions and give them your active attention.

Thank you for your attention to our presentation. We'll be pleased to use the remaining time to answer any questions you may have.

The Chair: Thank you, Dr Schumacher. I appreciate your comments and the specific suggestions that are attached.

We have approximately five minutes per caucus for questioning. This time the rotation will start with the NDP, Ms Lankin.

Ms Lankin: I appreciate your presentation, and it's a pleasure to see all of you again.

I have three areas that I would like to explore with you, and anyone can respond. But the first, perhaps, is directed to Dr Hoffman.

I have spoken to heads of psychiatry departments in a number of general hospitals. One of the concerns I hear, entirely off the record-and I didn't hear it presented here today, so I want to see if this is a concern we can put on the record-is the broadening of criteria for involuntary committal. If we experience, as we have in other jurisdictions, that CTOs are applied to a relatively small proportion of the patient population, with the scaling back of provincial psychiatric hospitals, I've heard a concern about what is going to be happening in our emergency rooms and the ability and capacity of our institutional psychiatric resources to meet the need and the demands that will be created.

In particular, I note that we have a number of recommendations from the hospital restructuring commission that were based on number crunching done at a time when the law was different than it will be, and that we may see a very different effect as a result of these amendments. Has the OMA given thought to this? Do you have any comments on that, Dr Hoffman or Dr Connell?

Dr Connell: There is a lot of concern with change at many different levels with legislation in this area.

In terms of resources, what we do know, and I think it was pointed out by the Schizophrenia Society, is that bed usage is going to drop down. So you are going to have those beds, which are already shrunk in the system, available for other patients, because these revolving-door patients will hopefully be maintained in the community.

In a study in Iowa which we have the use of in-patient beds was reduced by 86%, and visits to the emergency department for the chronic community treatment order population were reduced by half. This has been replicated elsewhere. This sort of legislation is present in 40 US states, as well as in other jurisdictions in Canada, so we have quite a body of literature that is building to show that it is quite effective in reducing the demand on the bed system and on the emergency department.

If you have a treatment plan, the legislation and treatment resources in the community, that treatment team is going to be on top of that patient, making sure that if there is any deterioration they're not going to have to go to the emergency department. If a GP or a family member is concerned about that patient, they will be in touch with a designated member of a treatment team. So it really puts a system of care, a hospital without walls, in the community, which I think is a humane and progressive way of treating this population, who until now have been at the mercy of shrinking resources. I think it ensures that a treatment plan is going to be available.

Ms Lankin: So you actually think there won't be a requirement to add additional institutional beds at this point in time?

Dr Connell: Not institutional beds, but I think what we may have with other aspects of the act is the ability to capture a population that hitherto did not receive treatment. These are people who were deteriorating and don't go to doctors' offices but whose family members were powerless to take anywhere. If those patients are deteriorating at home or are students at a university and going downhill, manic and deteriorating, those individuals could now be taken to an emergency department.

I think this is where some of these chiefs of psychiatry may fear they are suddenly going to get all these previously undiagnosed and untreated patients deluging the emergency department. We'll have to wait and see whether that is going to be the case. But working with the government on the next phase, which is the regulations, we can try to anticipate areas of resourcing, based on the literature, that might be needed.

Ms Lankin: I have two questions, but I'll go to the more important one that I want to address.

In the rationale for your amendments to community treatment orders, you talk about the fact that after considerable study from the consultation period, you have determined that CTOs, which are for persons who meet the involuntary admission criteria-in fact, you are looking at broadening this in some ways, because it is a less restrictive alternative.

One thing I am concerned about, and I'm not sure if this is a legitimate concern, but when I read that section, the individual has to meet the criteria for an assessment for involuntary committal, not involuntary committal criteria. In order for me to get my head around this, to see a CTO as a less restrictive option, I feel like the individual should at the very least meet the criteria for having been assessed for involuntary committal. That seems to be what you say the law does. But when I read it, it does something slightly different. Did you give any consideration to the form 1 versus the form 3 criteria in the way this section is written?

Dr Hoffman: Yes. I want to make the argument that by opening the front door, CTOs open the back door, so there should not be any need for increased beds. The form 3 criteria are actually quite different in that you do not need current evidence. It's simply the opinion that the person will run into harm. The form 1 requires evidence, A, B, or C-has threatened or is behaving in a way that's dangerous. So I think it's important for CTOs that you have an evidentiary-based opinion. The form 3 does not require that, because once the person is in hospital, they're no longer threatening their father or starving themselves, because the nurses are feeding them.

Ms Lankin: But they are receiving a psychiatric assessment as to whether or not they're a candidate. Presumably some people are assessed, and it is determined that they're not candidates for involuntary committal. So for a CTO to be left restrictive, I'm having a problem making a circle around that square.

The Chair: I'm afraid we are going to have to move on. We have about seven minutes.

Mr Clark: I'm interested in your comments about liability for physicians and psychiatrists. In section 33.6 of the proposed act, there are three subsections. The first deals specifically with physicians who issue community treatment orders, and it states pretty clearly "the physician is not liable for any default or neglect by those persons in providing treatment."

The next subsection deals specifically with the people who are involved with the community treatment order themselves, the other health care providers. It seems to me, in reading the three subsections, that the act pretty well indemnifies psychiatrists and physicians, as well as health care providers, if they are providing treatment based on the requirements set out by the physician or psychiatrist who issued the community treatment order. So I'm a little confused in terms of where you are coming from in stating that we're not providing enough indemnification.

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Ms LeBlanc: Specifically, we're looking at the word "treatment," because not everyone who is involved in the care plan will be actually providing treatment. Some will be providing supervision; some will be providing care. Treatment, when you start to look at it, can only be provided by regulated health care professionals. It's a bit of a picky question, but it's really just for the sake of completeness. We want everyone to be in. We want everyone who is part of the community care team to be indemnified.

Mr Clark: Arguably the line states "If a person who is responsible for providing an aspect of treatment under a community treatment plan." You don't feel comfortable that it states "an aspect of treatment under a community treatment plan"? I view that as covering it off, but I don't know. I'm not a lawyer.

Ms LeBlanc: The definition of "treatment" under the Health Care Consent Act is quite broad, but we just want to make sure that it is crystal clear that all aspects, including the supervision-because that isn't in there necessarily-and the ancillary care are captured.

The Chair: Mr Barrett, fairly quickly.

Mr Barrett: A quick question. You raise the issue of concern of an administrator releasing a psychiatric patient from a hospital. My understanding is that much of the thrust of these orders, which are issued by medical practitioners, is to keep people out of the hospitals. This is something we heard in the previous presentation. How realistic is that statement? How realistic are these community treatment orders, to be designed to assist people to remain in the community, and failing that, they go to the hospital for assessment? How realistic is that approach in the real world?

Dr Connell: I can only refer back to the response I gave to Francis Lankin, and that is, the studies we have, for example, in New York showed that the people on the orders had 44 days of hospitalization over an 11-month period; people without the orders were I think 101 days. So you're getting dramatic differences in the use of the hospital and the need for hospitalization. In fact, that's the one clear, resounding piece of research outcome on the community treatment orders as they've been applied elsewhere. We're encouraged by that.

The only other proviso about the treatment orders is that they must be combined with treatment in the community. You can't just put a person on an order without treatment. It's not enough just for housing or vocational rehabilitation-as some of the critics have said, "We don't need CTOs; we just need housing." That's not what the research is showing us. The research is showing us that you must have the person getting their faculties together so then they can determine what the best for them is in their rehabilitation. The only way you can do that is have intensive outpatient treatment services available to them.

The cost of outpatient treatment services is a fraction of in-patient services. If it's $600 or $1,000 a day for in-patient services, it's only going to be $10,000 a year for the outpatient, so you just need 10 days of hospitalization to pay for that person's entire year of outpatient services. In the Iowa study, if you had 2,000 people on CTOs for a year, you would save $34 million. That's taking into account the cost of the medication and the cost of the outpatient services. If they use 26 days less hospitalization per year, when you don't have that being spent, you're saving $34 million a year for 2,000 people on CTOs. So just from a cost basis, in terms of better using our health dollars, it makes a lot of sense.

Mr Patten: Very quickly, Dr Connell, I wonder if you might share with the committee a synthesis of some of these studies that you've referred to, especially the Iowa case.

Dr Connell: Fortunately, there is a foundation in the States called the Stanley Foundation. This is a family-I don't know if it's Stanley Tools-who have a lot of money and they put $400 million into this foundation. They have a Web site. I believe a lot of these studies are on the Web site. John Stanley sent these up to me by courier yesterday. He sent me up a number of them and we'll pass that on to you.

Mr Patten: Thank you. One other point, and it had to do also with the liability question. I would take that almost as a friendly amendment, Barb, when you talked about the aspect of treatment. As I read the legislation, the intent is that there will be a treatment plan that may have a number of players in it, and some of those players may not be "treating" the individual-they may be supporting in other fashions-but they do have a role and they have a responsibility. I think that was the intent. However, a friendly amendment might be able to clarify that, because it is a good point. Go ahead.

Mrs McLeod: In previous briefs that the OMA has made on the issue of changes to the Mental Health Act, one of the suggestions you'd made quite strongly was that there be a redefinition of "mental disorder" from the current act, wherein the current act it says "`mental disorder' means any disease or disability of the mind."

I don't have your proposed redefinition in front of me, but it seemed to me to be an important qualification that what we're talking about here is mental illness and not something as broadly defined as the current act is. Is that still a recommendation that you would make for amendment?

Ms LeBlanc: It's certainly one that we still believe in. We haven't pushed it forward today. We really did want to focus on what's in Brian's Law as opposed to bringing too many new concepts to the table.

Mrs McLeod: I appreciate that, although after many, many years we may not often be looking at changes to the Mental Health Act.

Ms LeBlanc: Understood.

Mrs McLeod: I guess my basic question is, given the current status of community treatment resources and the fact that Dr Musgrave has said that we need three times the number of ACTT teams that we currently have to be able to make community treatment orders work, I'm wondering practically whether you think these are going to be frequently used. I recognize that in the bill it's very clear that you cannot have a community treatment order without being able to provide the community treatment.

Dr Hoffman: Could I tackle that from a general hospital point of view? I am concerned about resources, not about beds. We're not used, at this point in time, to dealing with families and community resources on an in-patient unit to the degree that these acts imply. So I'm short on two kinds of staff on an in-patient unit to implement community treatment orders, one a psychiatrist-only 40% are attached to a hospital-and the second is social workers. I have 1.4 social workers on a 30-bed ward and it wouldn't take very many seriously ill people where I need a community treatment order to gobble up all the time. These are costly professionals. So that will have to be solved.

The community services: We've never been so rich-some of the changes that have come in in the last two years in this province-ACTT teams; not just ACTT teams, but ACTT teams attached to general hospitals under the authority of general hospitals. ACTT teams were designed in the States not attached to hospitals, and this gives us a tremendous right to access their resources and to coordinate care. As well, crisis teams, court diversion workers, and this week's announcements about increased sessional fees on psychiatric wards and increased on-call fees will help us to attract psychiatrists to work in these areas. In addition, the government has allocated significant millions of dollars to housing for these groups.

This is timely. Community treatment orders would not work without these community resources in play and this is an appropriate time. In fact, without community treatment orders some of these other resources won't be utilized, such as ACTT teams; they'll be immobilized.

Dr Connell: Mr Chair, could I just follow up on that, quickly? I think that's a misquote from Dr Musgrave, but he's going to be before the committee. I know you mentioned that in the House and we gave him a call. He's a strong advocate for the ACTT teams but I think he'll clarify for you what his thinking is about the two going together.

Mrs McLeod: It's evidently in a letter to Mr Clark.

The Chair: Thank you very much for coming forward. I don't know if it's been said here this afternoon, but this is only the second piece of legislation where we've gone to hearings after first reading. Mr Patten commented about friendly amendments. In fact, the bill is not really crystallized at all, and our hope from all three parties is that we have an opportunity to hear presentations such as yours and distill those down into changes to the bill, before taking the relatively hardened positions that seem to be more the norm in second and third readings. So we very much appreciate all those coming forward at this time.

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COMMUNITY ADVISORY COMMITTEE OF THE ST JOSEPH'S MENTAL HEALTH PROGRAMS

The Chair: I call our next group forward, the community advisory committee of the St Joseph's mental health programs.

Good afternoon to you both. Thank you for your indulgence. With the House proceedings, we're a little delayed today and we appreciate your accommodating that.

For the purposes of Hansard, I wonder if you would be kind enough to introduce yourselves. We have 20 minutes for your presentation.

Mr Terry Burrell: Thank you. My name is Terry Burrell.

Ms Margaret Van Dijk: My name is Margaret Van Dijk.

The Chair: Thank you. Please proceed.

Mr Burrell: Good afternoon, members of the Legislature. Thank you very much for permitting us to come before you to make our presentation today.

We're members of the community advisory committee of the mental health programs at the St Joseph's Health Centre. St Joseph's Health Centre, which was previously known as St Joseph's Hospital, is located at 30 The Queensway in Toronto. It's at the corner of Sunnyside and The Queensway in the Parkdale-High Park area in west Toronto.

Bill 68 is about mandating treatment in the stated interests of public safety. St Joseph's Centre's mission includes the provision of competent and compassionate care to our community. I should just note at this stage that during my presentation I'll be using "treatment" and "care" interchangeably. They mean basically the same thing. I'm not using a narrow definition for treatment and a broader one for care.

St Joseph's mission has also always emphasized providing care to the poor and the disadvantaged. When our advisory committee looked at the bill, we focused on the impact of the bill on our mandate because, in large part, we think that if a bill like this helps an institution like ours, then it's likely to be able to help the community at large. We pose the question: Will the bill help us or will it hinder us in our mandate of providing competent and compassionate care to our community? Will it help us provide care to the poor and the disadvantaged? Will our community be better off and will the public be safer as a result?

There are two principal mandated treatments in the bill which have a direct impact on St Joseph's. The first is the community treatment order, which mandates the kind of treatment that would otherwise have taken place in a hospital like ours, to have that treatment take place in the community. So we have a movement of treatment that would otherwise have taken place in the hospital out into the community.

The second mandated treatment that the bill presents is by way of broadening the criteria under which a person can be involuntarily committed to hospital for treatment. What it does is mandate more treatment in the hospital.

In considering the impacts on our facility, we have to look at the context in which St Joe's has been operating. First of all, the community itself that we serve includes South Parkdale. South Parkdale has a large number of people with extensive psychosocial needs and of course they tend to proportionately make up the highest users of our hospital services. We have in that community 17% of families living on low income. In some areas, over half of the residents live on social assistance. There has been an increase lately of 44% of single-parent families, an increase in the proportion of immigrants and a large number of people in the community who are in need of the services that the mental health program provides.

Parkdale neighbourhood has been the neighbourhood of choice for many long-term previous residents of both Queen Street Mental Health Centre and the former Lakeshore Psychiatric Hospital, so our hospital is in the area of Toronto that has perhaps the highest proportion of individuals at risk and vulnerable and that require substantial, on-going mental health care and support.

The other component of the context in which we have to look at the bill, apart from the nature of the community which we have traditionally served, is the impact of the changes in the health care system over the last period on our ability to meet the services that are demanded from us.

The first thing I'd like to note is that, as a result of the changes that have taken place, the nature of the demand that has been placed on our facility has changed markedly. The nature of the demand for mental health services in the St Joseph's Health Centre has increased significantly, in large part because of health care restructuring. Health care restructuring has decreased the number of beds that are available in Toronto as a whole for providing psychiatric services. There has been not just a decrease in the number of beds, but there has been a decrease in the number of beds that are available to people in the community at large. I'm not talking about just the St Joseph's community, but the community of Toronto. For example, at Queen Street there are fewer beds available, partially as a result of allocation to the provincial mandate that facility now has and partially as a result of the choice the broader institution has made to focus more on research and other tasks and away from treatment. So we have a decrease in the availability of alternative treatment facilities to St Joseph's, therefore an increase in the demand for our services.

St Joseph's has traditionally been very underfunded. Prior even to the health care restructuring, St Joseph's was identified as a facility that had a proportionally smaller availability of resources for its mandate than other facilities; for example, North York General. So we've had a major increase in the demand for our services and we've historically been underfunded. Recently we have had some increase in our funding, for which we are very grateful, but the increase in the funding, in our view, and just perceiving the demands on the hospital, hasn't really brought us back to where we should have been before restructuring and the allied impact increased the demand for our services. We feel that we continue to be struggling to provide the service we want to provide.

Does Bill 68 help us? Listening to the Ontario Medical Association, I think the major point they were making is that, in their view, a facility like St Joe's should be helped by the bill because it should free up hospital beds by diversion, primarily through the community treatment arm. If that takes place, of course, we will have more resources available in the hospital to do the kind of treatment that we'd like to do. But at this stage we're very skeptical that will actually take place. My reading-and I'm sure it isn't as deep or profound as the reading the Ontario Medical Association has done of the research-is much more ambiguous, that the results are not nearly as clear-cut in terms of the diversion of community treatment recipients from the hospitals and into the community.

At the same time, while it's not clear that there will be a clear diversion there, the expansion of the criteria by which admissions can be made to the hospital suggests that we will be getting admissions of people into the hospital that we wouldn't have been getting under the current regime, if only because the criteria are wider, broader, more expansive.

We're deeply concerned about the impact of the bill, were it to become law, on the resources available to our hospital to be able to do the job we're mandated to do.

We also have to look at the quality of care. We're mandated to provide care. If the bill comes through, the community treatment orders are implemented, and much more mandatory treatment takes place than currently takes place, is that the kind of care we would like to see? We're committed to compassionate care which is respectful of the person and the person's right to make decisions about their own health, as well as the treatment considering the possible negative impacts on the individual and others. It should be care which is respectful. It should be least-intrusive care. We don't see this in the bill now. We don't see any requirement that the treatment in the treatment orders is least intrusive.

Now, listening again to the Ontario Medical Association, it's almost by definition that if you're treating in the community, that's less intrusive or least intrusive. That's not necessarily true at all. In fact, it may have more intrusive care, more medication of the sort that will make a person tractable in the community than would be administered in a hospital, were the person in the hospital for care.

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We have to look very closely at two things. Does community care necessarily mean it's less intrusive? Not necessarily, and here we get into the resources that would be devoted to care in the community. But we also have to look at the legislative regime and whether the legislative regime itself mandates or requires the care and the plan to be least intrusive.

Of course there are the rights of the patient that are implied by the compassionate and least-intrusive care that we're very concerned about. An expansion of the ability to treat involuntarily is something that all of us have to be concerned about. We're deeply skeptical that this bill will provide care which does respect the rights of the individual.

We're also concerned that the bill will result in a diversion of two kinds of resources. The first kind of diversion we're concerned about is a dollar resource diversion into care that may well be inferior; care that's inferior because it's care under a community treatment order that's underfunded. In our view, that takes resources that are inadequately provided into a form of care that may well be inferior, resources that could have been used better in forms of care that are better established, in a hospital setting or elsewhere.

We're also concerned about diversion of dollar resources by the government to protect the legislation. This legislation is quite controversial and almost undoubtedly will be the subject of legal challenges, charter challenges, because of the intrusive aspect. Is that kind of activity worth what the bill is offering us in terms of potential impacts? We ask you to consider that. We think an enormous number of resources may be diverted into that.

There also may be a diversion into the kind of care-and this goes back to the first point I was making about diversions-that is inferior because it's devoted to the use of the new powers, because members of the profession are under pressure to use the new authority, to use the new pressure, even perhaps against their better judgment, because of the pressure from families and others.

Finally, we're concerned about the diversion of political resources. The profile of the bill gives us the following kind of concern: If this bill becomes law, we're concerned that passing the bill will somehow convince the Legislative Assembly and the public at large that the mental health agenda has been addressed and addressed adequately. We think that is a significant diversion of political resources away from this issue. We don't think the bill, as it stands now, does address comprehensively the needs we feel in our community. We don't think the bill intends to do that or purports to do that, but by gathering the kind of attention it has and diverting political capital in that direction, we're concerned that the mental health agenda will be shoved to the side, left, and the government and others will move on.

That's the substance of my presentation. Margaret Van Dijk is going to go from the general concerns we have to talk about our mission, our mandate, in the context of how the bill might effect-and this is a hypothetical-someone who is a member of our community, someone we have the mandate to treat.

The Chair: I should alert you that you've got about four minutes left for your presentation.

Ms Van Dijk: My concerns are, as we said, about the safety of the community as well as the well-being of the mentally ill. We have a hypothetical patient, Joe. Imagine Joe. Joe is a Canadian. He lives in Parkdale. Joe has a history of schizophrenia. He has paranoid delusions. He believes he's a target for Mafia hit men. But he's not violent. He needs drugs, but he doesn't like taking them because of their side effects. When he went off his medications in the past, he was always hospitalized and stabilized.

Joe has heard of community treatment orders. His perception of them is that a CTO will punish him for his illness. He knows he's at risk of having one issued against him. That's why Joe now stays at home in a shared room in a Parkdale rooming house, watching TV all day, not eating properly, not taking care of himself, gaining weight. He never goes out. He knows his behaviour scares people. He grunts. His tongue clicks. His body language and disorganized speech is scary for people who don't know him.

The current lack of beds and resources would mean that Joe is at risk of having a community treatment order issued against him. The mandatory nature of this order terrifies him and so do the nauseating side effects of the injections imposed by the order. So terrified is Joe of having the CTO issued against him, of losing his benefits, his drug card, his room and any semblance of freedom that he has gone underground, that he stays in hiding in a cramped and messy room in Parkdale.

Joe is in fact suffering more and more. He's daily becoming more dangerous to himself and others. As you heard, 10% of young male schizophrenics commit suicide. What will happen to Joe? He's becoming quite detached from reality.

What does Joe need? What's appropriate for him? We'd like to see more support: support like specialised residential housing; a caring institution where he can reside in moments of crisis; a caring and trustworthy relationship with his physician and health care providers, the ones involved in direct clinical care-his attending physician, not just any physician. We'd like Joe to have access to the latest medications that do not give him disturbing side effects. We'd like assurance that in a crisis he'll have his rights read to him within 12 hours. We'd like him to have the right to the second opinion of a psychiatrist. We'd like him to have assurance that he's not going to be cut off his drug card, his benefits, his income support. We'd like him to have confidence that his drug record will be seen only by health professionals and with his full consent, unlike section 16 of Bill 68. We'd like him to have confidence that he'll get support without a CTO.

Bill 68 does not offer Joe these supports, so what can he do and where can he go? We know that St Joseph's hospital is stretched to the limit already. We heard the OMA mention they have 1.4 social workers to a ward in their hospitals. So where will Joe go?

In conclusion, on behalf of St Joseph's mental health programs and especially on behalf of the community St Joe's serves, we ask you to seriously consider this bill and its implications for our community, consider more carefully the possible misuses the bill could lead to, think about the lack of security for the community that will still exist due to the lack of institutions and services for the seriously mentally ill. We'd like you to offer more support systems to contribute to a sense of safety in the community.

As it stands, Bill 68 shows a lack of respect for people's fundamental rights and freedoms, and it jeopardizes the compassionate care which is so evidently what the mentally ill need and their physicians want to provide. We think the seriously mentally ill deserve a closer look at Bill 68, and we think our community's safety deserves a more thoughtful approach to this issue. Thank you for your attention.

The Chair: Thank you very much. You've timed it perfectly. That was your 20 minutes. We very much appreciate your taking the time to come down and share your views with the committee today.

Ms Lankin: Mr Chair, I was just wondering if you could instruct us with respect to the rest of the day's agenda. I'm very keen to hear both of these presenters. In fact, I have a terrible conflict post 6 o'clock. Have you made arrangements?

The Chair: I'm led to believe that the folks from the Mental Health Legal Committee have very graciously agreed to allow themselves to be rescheduled.

Ms Lankin: Terrific. Thank you.

The Chair: We are in their debt and certainly we'll be very accommodating for the rescheduling. That means we should only be a few minutes past 6 o'clock.

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ONTARIO HOMES FOR SPECIAL CARE ASSOCIATION

The Chair: The next presentation will be from the Ontario Homes for Special Care Association. Could their representatives come forward, please. Good afternoon. Welcome to the committee. Just a reminder that we have about 30 minutes for your presentation, barring any votes back in the Legislative Assembly. Perhaps for the purpose of Hansard you could introduce yourselves.

Mr Brad Rye: Good afternoon and thank you for this. We're from the Ontario Homes for Special Care Association. This is our president, Mike Dowdall. This is the secretary-treasurer, Connie Evans, and I'm the vice-president, Brad Rye. We'd just like to go through the first page of our handout so that you know who we represent.

The present Ontario Homes for Special Care Association is a non-profit organization founded and established by the homeowners and operators throughout Ontario in 1991. At that time all applications were accepted. As the association evolved and matured it established for its members a standards checklist and code of ethics which today all members in good standing must adhere to and abide by. The monitoring and reporting of violations of these good practices are the responsibility of nine directors throughout the province. This information is kept confidential and is used only by OHSCA as we self-police our members in an effort to ensure quality homes. The nine provincial directors and five executives have been given the authority by the members to either accept or refuse and, when necessary, repeal memberships.

Presently, our membership stands at 110 members, or approximately 73%. These homes represent 1,160 residents, or 84%, of the residents in HSC homes in Ontario. In the remaining 29% of homes that are not members, we are aware there are homes operating and practising within our standards that would be accepted by this association; however, there may be others that would not. The association is presently 100% funded through annual dues by the members. All area and provincial directors are volunteer and are elected by its members. All area and provincial directors are volunteers and are elected by the members.

Mr Mike Dowdall: I'd like to carry on with page 2, explaining the HSC program and when it was created, in 1964. At that time it was to provide long-term care to people with a serious mental illness. Over the past five to six years, through mental health reform and the mental health system changing, the program has evolved into both short- and long-term care for the seriously mentally ill. The reason for our activities here today with the CTOs is that we are basing ourselves as proof that if the people are supervised and carry on with their medication in a proper environment, their quality of life is enhanced greatly. Our homes are heavily regulated by the Ministry of Health, as opposed to the unregulated boarding homes etc which do not have the supervision and assistance with medications and with daily life skills.

There's a level of care expected in a home for special care, which of course would enhance anyone with a CTO because they would have 24-hour response to a problem or an oncoming crisis. As each individual is different, these homes are geared to respond to the different needs of each individual resident rather than to have a form of response which would generalize the care for the people involved.

In a lot of cases you're allowed to assist these individuals of their own free will because you have a trust engagement with the person. Persons with serious mental illnesses have a great deal of paranoia when it comes to trust. Whether it's trusting a medical professional, a friend etc, you must open a relationship and make sure that relationship is sustained.

Our homes: As you can see, we've listed out many of the things that a home provides aside from the roof, bed and meals. We make sure they have a medical practitioner, whether it's a house doctor in some of the rural locations or it's a personal physician in the more urban settings. They get regular medical care as well as regular psychiatric care, and if the psychiatric care is not available close to the home, then we either make arrangements for a psychiatrist to come and visit or we do the mileage and take them to the psychiatrist. None of this would be left to the owner's prerogative; it's all under the medical and psychiatric care of their physician and psychiatrist.

The HSC program has proven to be an extremely valuable resource for the province of Ontario for people with serious mental illness who cannot live independently. There are many who can manage their own affairs and live independently. The people we house are persons who do not have these abilities or have not as yet learned these abilities to take care of themselves. That is the transitional part of our program; it's people coming in who are unable to feed themselves, unable to master their medications etc. We get them on the program, get them straightened away and hopefully they move out into more independent living, sometimes with a social worker on a weekly visit and sometimes with a social worker on a monthly visit. Obviously, the goal is to give these people a better quality of life and move them out.

Many of the residents in our program have come from less supportive housing environments and their needs were not being addressed or met. These people have turned into both satisfactory residents and normal human beings, working within the community fabric, rather than being isolated in a boarding house or sitting in a room by themselves with no one paying attention to them.

In many cases we have taken people from the homeless population through the different hostels. These people, with a lot of encouragement and a lot of care from outside agencies etc, have been a success and are remaining stable in the homes.

A long-standing inadequacy that's painfully clear is the current severe shortage of this type of housing, and that's province-wide. We can tell you that as close as York region the system is saturated, and as far away as Thunder Bay the system is saturated. For these individuals that you're looking to help with a community treatment order, we need an end result. Housing is the same as the best medication available. Stable housing makes a person comfortable and makes them feel good. Therefore, they stay off the street, out of the hospitals and out of the judicial system.

Right now, if the community treatment orders were to be enacted, there are not enough beds in the province to take care of all these new walking-well individuals. There wouldn't be an option for them. They would probably end up back on the street or back in a psychiatric hospital, which is not a choice that any of us would like to make.

We also have the ability within our program to provide even greater levels of care than we do today. We have investigated this with the Ministry of Health. Our owners are quite willing to move forward, providing a more supervised atmosphere, perhaps a more supportive atmosphere to individuals who are finding it very hard initially. The owners are willing to put their private funds forward and make sure that there are buildings for those who need the extra care and support. Of course, that must be funded. Today there is not enough money in the system or in the program or being paid to the home owners to allow them to progress in that direction.

In reality, the current population in HSC may have few housing options altogether. If the homes for special care program was to collapse in this province, there's really little chance of their finding other suitable housing. They would have to be taken back into psychiatric facilities, or turn to the street.

In the overview section, while the care component is mentioned in various statements throughout, it becomes apparent that many underestimate what the care element really is that's provided to the population in our homes. In many cases the care component far outweighs the actual housing component. It must be understood that these people have repeated problems, spontaneous problems which happen inconsistently, and you must have a person there who can respond to each individual's needs on a 24-hour basis. Outside support services are certainly valuable. They assist these individuals, but they're not available 24 hours a day.

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The style of care in an HSC home provides the resident with a familiar stability in their lives, including their address, neutralizing a situation which, under many other housing options, results in hospital readmission, and that's very costly to the Ontario taxpayer.

Our resident population consists of individuals who range in diagnosis from developmentally challenged to psychiatrically diagnosed and include those suffering from addiction, defective behavioral management skills, and other affective disorders, who would not normally or successfully fit into a less supportive environment. The instability of their mental health leads to confusion and accelerates the decomposition process, which can result in a complete breakdown of an already fragile ability to cope with life as they do. When these situations appear, OHSCA is confident our homes have the ability to recognize this situation, intervene and diplomatically diffuse it, avoiding the possibility of a full-scale crises. When you're dealing with persons on a CTO, if they are not stabilized, they will cycle. They will then get well on their medication and in many cases say, "Now that I am well, I no longer need my medication," and be back into the system again.

The ability to intervene and stabilize a crisis before it reaches a climax decreases the cost of other community services such as ambulance, hospital, police and the judicial system. This alone saves our government a tremendous amount of health care dollars and other associated government costs.

We have put forward some suggestions. The following are some suggestions from the Ontario Homes for Special Care Association to alter the HSC program in an attempt to address the need when housing and 24-hour support are a component of a community treatment order.

(1) Continue to bring HSC under the umbrella of mental health reform and have HSC recognized as a mental health provider that can be flexible to the needs of a geographic region or area while remaining consistent through the Ministry of Health administration and control.

(2) Maintain and ensure that home standards, safety, accountability and monitoring measures are in place and enforceable.

(3) Ensure that the HSC program and CTO are focused on the resident's quality of life, enabling operators to provide for and assist an individual to reach their maximum potential.

(4) Fund the HSC program at the proper levels to allow the homes to be responsive to the above and be profitable small businesses in Ontario, therefore keeping the owners that you have today and attracting quality ownership in the future.

(5) Community supports must be put in place where they are absent and all "seriously mentally ill" must have equal access to these supports.

The Chair: Thank you very much. That leaves us with just slightly under five minutes, let's say four minutes, per caucus. This time the questioning will commence with the government.

Mrs Julia Munro (York North): Thank you very much for coming here this afternoon. I have to insert a personal message here in that I've had the opportunity to visit both of your homes and several of the homes in my riding. I think that your experience in homes for special care and understanding some of the issues from your perspective are really important to this committee. I certainly want to compliment you, not only professionally on what you do for the residents of your homes, but also for being able to be here today to give us some input into this process.

I wonder if there are any specific areas of amendment you would like to offer at this point with regard to the Mental Health Act and the Health Care Consent Act, given the kind of practical experience you have and recognizing that you have provided us with some of these suggestions at the end of your brief.

Mr Dowdall: We would just like to comment that obviously we are in favour of this type of order, community treatment orders, because we have personally been through the results of successful medication treatment for individuals who are not stable. Once you make these persons stable and get them into an environment of safety, then they no are longer a danger to themselves or a danger to anyone else, whereas some of the residents we acquire over time have a lengthy record with the police department. In some cases we're still going to court seven and eight months after they've been admitted to our homes, all over some violent issues, drug dealing etc. It just seems that when they get into a stable environment and get on a medication themselves so that their schizophrenia or paranoia is not affecting them, then they stabilize and they're quite normal human beings. I think it's a terrible shame that somehow in Ontario we've found a way to allow people to deteriorate and we don't have a choice to turn that direction around.

Ms Lankin: Sorry to interrupt. I just want to offer my apologies. I have a scheduling conflict and I have to leave. I appreciate your presentation and I'll be sure to call you if I have any follow-up questions.

Mr Dowdall: Certainly.

Mrs McLeod: Just a couple of questions. The funding that would support the psychiatric care that many of your residents need would be Ministry of Health funding. Is that right? In terms of the establishment of any new beds, you would be eligible or members of your association would be eligible to apply for capital funding for the creation of new beds?

Mr Dowdall: No.

Mrs McLeod: So all the capital funding has to be-

Mr Dowdall: Private.

Mrs McLeod: -leveraged privately, which is often difficult in the not-for-profit sector.

Then my next question is, with the community beds that are being developed for people who have psychiatric difficulties-and there's a three-phase program the government has introduced-are you participants in the first phase of that? Is there a possibility that homes for special care would be able to establish that there would be some funding for actually establishing new beds as well as receiving ongoing operating support?

Mr Dowdall: Actually, the way it has to work under the criteria today is that homes for special care would have to be linked to an existing transfer payment agency to access that funding. To date, none of our homeowners have opted to align themselves in that way with a transfer payment agency, but certainly that is available. Within the ministry itself we have been, over the last six to eight months, dispensing beds in various areas of the province where there's need and licensing new homes for these same individuals.

Our involvement with the homeless criteria has always been stable and has always been active, because the shelters in Toronto, Thunder Bay, Brockville Kingston, Hamilton or wherever they happen to be already utilize our homes as stable housing for the individuals once they get them in off the street. The only thing we don't access is the capital funds. Our owners capitalize their homes themselves and then of course want the beds filled by the ministry.

Mrs McLeod: But the housing initiative relates very directly to the bill because it is, as you've said, a significant part of providing the community support. Maybe, Mr Chair, I could ask for this as a clarification just for my own information. I don't have the actual dollar figure in front of me, but I think it's something like $40 million, $41 million over the next three years-

Mr Clark: It's $45 million each year for the next three years.

Mrs McLeod: Is that capital funding or is that considered to be the operating-

Mr Clark: It's operational funding.

Mrs McLeod: That's operational support. So then the capital funding to establish those beds has to come from the private sector? Thank you. I appreciate that qualification. I've probably now used my time, have I? I have another question.

The Chair: Please go ahead. I must apologize. When I recognized Ms Lankin, I didn't realize Mr Clark had a question as well. So feel free to take half of her time and Mr Clark can have the other half.

Mrs McLeod: I won't abuse that. I wanted to ask, in the work that you do, do you find that your members are often working with individuals-I guess I want to follow up on your last response to Mrs Munro. Do you find that there are individuals where you just can't provide the help they need and a community treatment order would be of assistance? I'm just wondering how you see that being helpful to you in a specific way.

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Mr Dowdall: Certainly there is an opportunity for that to take place. Today we get residents who, as you say the nice way, you can't handle, and if you had access to an outside agency to assist you with that individual and they were forced to take the assistance or to be assisted, then certainly you might be able to stabilize them and keep them in the home.

The way it is today, of course, you can't force them to take the medication, you can't force them to work with a community service. So you have to go to the ministry and say, "This individual is upsetting to the environment of the home to a point where they're a danger to others or a danger to themselves, and could you please place them elsewhere?" It's pretty much understood that if we can't handle them, there isn't going to be much of a community-based housing element that can handle them, and they normally return to hospital or end up homeless.

Mrs McLeod: But if the individual is non-compliant with their medication, which would make them a candidate for the community treatment order, and they're still saying, "No, I'm not going to take my medication," how do you enforce compliance?

Mr Dowdall: We wouldn't. We would certainly use whatever services were available. We'd try to coerce the individual to take it, but if a person is going to be forced to take medication, it's going to be by someone other than a home owner or a home operator in a home for special care.

Mrs McLeod: Do you think just the existence of the order is almost like an agreement that would encourage them to be compliant?

Mr Dowdall: I think so.

Mrs McLeod: I'm leading a little bit.

Mr Dowdall: In many of our homes, people are told: "You must be a reasonable individual with the others in the home. When you don't take your medication, you're not a reasonable individual. So therefore you have to make a personal choice here. Do you like where you live? Do you enjoy the individuals you live with? Then you should take your medication. Otherwise, I think you should go looking for another place to live."

Mr Clark: I just have one question. First, I want to make a statement. You stated in your suggestions that you wanted to focus on the residents' quality of life and try to assist patients, individuals, to achieve their maximum potential. I would argue that everyone in this room would agree that is the obvious goal we're all trying to accomplish.

That being said, the previous witness had raised skepticism about community treatment orders and whether the supports would be there in the community and told a hypothetical story about that.

The legislation talks about a plan for treatment for people. Hypothetically speaking, what would be your ideal form of a community treatment order? We heard while we were on consultations that a physician would be not only looking at supportive housing and medication but would be looking at vocational counselling and making sure the supports are in the community to encourage the individual to reach their potential. What would be your ideal community treatment order, for example, if I was in need of such an order?

Mr Dowdall: First of all, you'd have to have the persons at the first contact educated as to what a community treatment order covered and what was involved, and when you saw, observed, heard about this individual acting irrationally, so that they fit the criteria of a community treatment order, you would have to have those people knowledgeable about what they should do with that individual right away, who they would contact, whether it would be: "Do we take them to a hospital? Do we take them to a treatment centre?"

Once the person has made first contact, then they must make sure they make this individual understand, "This is not now your choice; this is an order and you must comply," or the other option; you must offer another option, whether it be jail or whatever. But there has to be a criterion. It's the same reason why I don't walk into IGA and steal bread: because I know there's a good chance I'm going to get caught. They must understand that there is something back there if they don't follow the community treatment order.

Once they have complied or offered to comply with the treatment order, you must make sure they have stable housing, you must make sure they have both medical and psychiatric facilities available to them right away, because there are a lot of people with a psychiatric illness not on medication who don't realize what their medical disorders are. Those must be dealt with immediately. Then, after you have them stabilized, you must give them something for their mind to do now that their mind is operating. So you need vocational help, you need support workers, you need social workers. You need all of these individuals to reacclimatize these individuals to the community, because realistically before they've gone on their medication, although they've lived in the community, they wouldn't recognize the community. So you have to reaccess them to what is available in the community, and you must make sure you're consistent. It must continue on. It can't be something that's three months and, "OK, Johnny,"-or Suzie-"go out and do your thing," because it won't work.

Mr Clark: So, not meaning to put words in your mouth, community treatment orders for you are not just about medication?

Mr Dowdall: No, they're about changing their whole lifestyle. This gives these people an opportunity to have a quality of life that a lot of them will never realize unless you force them to realize it.

The Chair: Thank you very much for coming before us here and, again, our appreciation for your accommodating a later schedule. I appreciate everyone else who has come to listen to the proceedings today.

The committee stands adjourned until 10 o'clock at the Sheraton Hotel in Hamilton, Friday morning.

The committee adjourned at 1806.